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Ron Brind Posts: 19041 Joined: 26th Oct 2003 Location: England | quotePosted at 22:10 on 13th July 2010 Does anybody know how painful this condition is? Has anybody else been unfortunate enough to have been diagnosed with it, after me that is? Just can't begin to tell you how painful this disease is as blood manage's to somehow travel through the lipomas. They increase in size (this is when they are at their most painful) and shrink when they think the time is right. Nobody seems to know what triggers them, they are just 'fat lumps' that can appear anywhere. At times totally debilitating and being treated with Morphine (MST), Codeine Phosphate and Paracetamol. Oh, and Oramorph for a quick fix.......painkillers! Anybody want to invest in a cure? By the way, fortunately, it's not infectious! |
cathyml Posts: 23275 Joined: 25th Jan 2010 Location: South Africa | quotePosted at 22:17 on 13th July 2010 Ouch Ron, I am so sorry to hear that and hope that it goes away as quickly as it came. With Morphine, codeine and paracetamol I am surprised you are still awake at all! |
| Ron Brind Posts: 19041 Joined: 26th Oct 2003 Location: England | quotePosted at 22:26 on 13th July 2010 As well as a large whiskey when they are really bad CathyML. Honestly, so painful and first identified by Frances X Dercum back in the late 19th Century. Nothing appears to have been researched since! |
James Prescott Posts: 25952 Joined: 11th Jan 2010 Location: UK | quotePosted at 22:31 on 13th July 2010 just had one ron --enough for now  |
| cathyml Posts: 23275 Joined: 25th Jan 2010 Location: South Africa | quotePosted at 22:38 on 13th July 2010 I think this calls for some POE power, so how about it members? Ron needs our thoughts, prayers, healing vibes, or whatever you use for wishing health and strength. |
Rob Faleer Posts: 703 Joined: 10th Jun 2005 Location: USA | quotePosted at 22:46 on 13th July 2010 So sorry to hear about your affliction, Ron! I hope that something can be done about it soon! Here is a website from the U.S. National Institutes of Health that provides some information: http://www.genome.gov/17516629. |
| James Prescott Posts: 25952 Joined: 11th Jan 2010 Location: UK | quotePosted at 22:47 on 13th July 2010 good luck ron. |
Cathy E. Posts: 8474 Joined: 15th Aug 2008 Location: USA | quotePosted at 23:24 on 13th July 2010 My thoughts and prayers are with you Ron. Hope you're soon feeling some relief. |
| Rob Faleer Posts: 703 Joined: 10th Jun 2005 Location: USA | quotePosted at 23:25 on 13th July 2010 Here are some more online resources: http://www.dercumsociety.com/intro.html http://www.facebook.com/group.php?v=wall&gid=27221609648 (a Facebook support group originating in the UK) |
Krissy Posts: 15430 Joined: 8th Jul 2008 Location: USA | quotePosted at 01:20 on 14th July 2010 Ron, I wish I could help take away your pain! Prayers are being said....with love! |
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